Living With Purpose
Today marks 7 years since my Kathryn breathed her last breath in my arms. She was two days old. But those two days changed everything for us. For me. For my future. I still cry. I cried today when I posted the only picture I have of me holding my sweet baby girl. I still […]
It’s been six years since she left us. It’s hard not to relive that day. For two very short days, we watched her struggle to breathe and live. My husband and I prayed that somehow a miracle would happen, but one never came. Dear Kathryn – I want you to know you’re missed. We love […]
March and April are always pretty difficult months for me. It’s March for Babies time, and I am dedicated and committed to raising as much money as I can each year. But with this responsibility (and let it be known, this is my passion, but I also consider it a responsibility, which I’ll explain) comes […]
Tonight promises to be either a REALLY exciting night for one person (or many people!) OR it’s going to result in an unfathomable amount of money still in the pot to be won at the next drawing. Either way, in the case that you win the 1.4 BILLION dollar lottery, I’m just gonna go ahead […]
It’s been awhile since I’ve shared about Twin To Twin Transfusion Syndrome (TTTS) on my blog. Since that’s why it all began, it seems only right to share periodically. Additionally, the TTTS Support Team is trying to raise some funding for some projects, and I’d like to highlight their efforts. (More on them at the […]
It’s Kathryn Day I cannot let the day pass without remembering her, and making sure everyone else remembers her too, but I also don’t want the day to be a sad and gloomy day. I challenged everyone through my Facebook page to do something kind for someone today in Kathryn’s memory. Can you do something […]
Yes, Children Grieve Too Today is National Childhood Grief Awareness Day. It’s kind of ironic, because just the other night, quite seemingly out of no-where, I heard Jelly Bean sobbing in her room. Sobbing. Now, she is a very dramatic four year old, so crying is not an unusual event in our home. In fact, […]
It never occurred to me to shop for a casket for the baby. Perhaps because I was hospitalized during those final weeks, and, while the situation was grim, I still held on to a shred of hope. I could not allow my mind to go there. I could not plan for her death. For their […]
If you have found this page because one of your twins has been diagnosed with hydrops fetalis caused by TTTS, I am very sorry. The prognosis is bleak. However, it is not over and there are cases in which laser surgery has reversed the hydrops. So, do your research, be informed, seek more opinions if […]
I just wanted to share this little video I made as we get ready for March for Babies on Saturday. This is Why I Walk Customize a free photo slideshow And NO – I am not asking anyone for a donation for our March for Babies Team – cause I’ve already hit that hardcore. (unless […]
We must capture those moments when something Amazing happens. Memorialize it forever; in our hearts, on our camera, on our blogs… some place. Today, something amazing happened. Tiny pointed right up to one of the butterflies decorating her wall and said “butterfly.” (OK, so it came out “bee-fly” but she is speech delayed – cut […]
