Yesterday I came across an article about Kasey-Rae Chambers and her twin daughters Hallie, left, and Harlow. Kasey-Ray was diagnosed stage 3 at 16 weeks, and she and her girls underwent fetoscopic laser surgery. The surgery was successful, and although the twins were born at 28 weeks and spent two months in Neonatal intensive care (NICU) they are doing really well now!
Kasey-Rae has made herself a national spokesperson for TTTS in Australia, and has begun a support group and started an annual walk. See below for the website and information.
TWIN TO TWIN TRANSFUSION
- TTTS is a potentially deadly disease of the placenta that affects 15-20% of identical twins.
- The twins are conjoined at the placenta which contains abnormal blood vessels.
- Kasey-Rae Chambers has started a national support group for families dealing with TTTS.
- On August 10 this year, Hallie and Harlow’s Walk to Fight TTTS will take place at Mooloolaba. All proceeds will benefit other TTTS families. To register and to find out more please go to www.walktofight.com.au.
Read the full story about Kasey-Rae and her girls here.
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katbiggie
Freelance writer at Kat Biggie Press
Alexa B, who blogs as "Kat Biggie" is a wife, mother, and writer. She has three children and one in heaven. She recently self published a book entitled "Sunshine After the Storm: A Survival Guide for the Grieving Mother" which is available on Amazon. She blogs about life after the loss of one of her twin daughters to TTTS, motherhood, all things parenting, advocacy, grief support and social good.
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