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Who would you turn to if your child was born with a rare condition?

August 6, 2015 By katbiggie 4 Comments

Christy's Courage

When Christy Cook was born, 50 years ago, her esophagus was not connected properly to her stomach. She had to have 22 surgeries to get everything right! She was 4 years old when she was finally able to eat food like other kids her age! The condition she suffered from is called Esophageal Atresia (EA/TEF), […]

Filed Under: Children's Health, Do Good Feel Good, Newborn Health Tagged With: children's health, EA/TEF, fundraising, non-profits, rare diseases

Her Gift…

July 8, 2014 By katbiggie Leave a Comment

I am constantly searching for news about TTTS that I can share with you all. While this is an incredibly sad story, it demonstrates the commitment that TTTS parents have to helping others who are in this journey, and in our commitment to finding answers. Maybe even a cure one day. This story touched me […]

Filed Under: TTTS Tagged With: fundraising, Medical University of South Carolina, TTTS Foundation

NJ Mom’s Club Raises over $10,000 for TTTS Foundation

May 13, 2014 By katbiggie Leave a Comment

TTTS Mom

TTTS Mom and friends raise a whole lot a money! So these moms have set the bar REALLY high for the TTTS community! I thought this was a great story, and I wanted to share it. If you are looking for ways to raise money for the Twin to Twin Transfusion Syndrome Foundation, it doesn’t […]

Filed Under: TTTS Tagged With: fundraising, TTTS, Twin, Twin to Twin Transfusion Syndrome

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