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If only she could be here…

April 18, 2016 By katbiggie Leave a Comment

March and April are always pretty difficult months for me. It’s March for Babies time, and I am dedicated and committed to raising as much money as I can each year. But with this responsibility (and let it be known, this is my passion, but I also consider it a responsibility, which I’ll explain) comes […]

Filed Under: Blogging Tagged With: Advocacy, babyloss, Grief, Kathryn, March for Babies, March of Dimes, NICU, TTTS Angels, TTTS Survivors, Twin to Twin Transfusion Syndrome

Elena and Diana’s story

January 28, 2015 By katbiggie Leave a Comment

Today we hear from Laura D. who is sharing her TTTS journey with us. Her girls Elena and Diana are double survivors (thankfully!) but they still had a tough journey to make it here alive. Twin to Twin Transfusion Syndrome is never an easy battle. Thank you Laura for sharing your girls and your story […]

Filed Under: TTTS Tuesday Tagged With: double survivors, NICU, Twin to Twin Transfusion Syndrome

Is Heaven for Real?

December 8, 2014 By katbiggie 3 Comments

is heaven for real

This is my period of grief. In just a few days we will celebrate the third birthday of my identical twin daughters, and just two days later, mourn the 3 year anniversary of the loss of one of them. I try to fill the birthday with joy and celebrate my survivor Tiny as much as […]

Filed Under: grief, infant loss, Kathryn Tagged With: Faith, heaven, Neonatal intensive care unit, Twin, Twin to Twin Transfusion Syndrome

December 7th is World #TTTS Awareness Day

December 7, 2014 By katbiggie 1 Comment

Better late than never. I posted a bit on facebook today, but I felt like I couldn’t let the date completely pass without mentioning this day. TTTS, Twin to Twin Transfusion Syndrome,is a disease of the placenta affecting identical twins who share a placenta. While this may not directly impact you, perhaps you know someone […]

Filed Under: TTTS Tagged With: TTTS, TTTS Awareness, Twin to Twin Transfusion Syndrome, twinless twins

December 7th is World TTTS Awareness Day

December 7, 2014 By katbiggie Leave a Comment

Awareness Saves Lives! TTTS is a disease of the placenta affecting identical twins who share a placenta. While this may not directly impact you, perhaps you know someone who is pregnant with ID twins? If you do, please share this information! Awareness saves lives. katbiggie on Google+

Filed Under: Awareness and Education Tagged With: Neonatal intensive care unit, TTTS Awareness day, Twin to Twin Transfusion Syndrome

Cheated in the final moments {infant loss}

October 6, 2014 By katbiggie 11 Comments

It never occurred to me to shop for a casket for the baby. Perhaps because I was hospitalized during those final weeks, and, while the situation was grim, I still held on to a shred of hope. I could not allow my mind to go there. I could not plan for her death. For their […]

Filed Under: infant loss Tagged With: Grief, Kathryn, NILMDTS, Now I Lay Me Down to Sleep, Pregnancy and Infant Loss Awareness, Twin to Twin Transfusion Syndrome

When the unexpected happens {TTTS}

September 29, 2014 By katbiggie 7 Comments

I was cleaning out my email and I came across a trail of emails I sent out to friends and family, starting on September 29, 2011. We had just received our TTTS diagnosis. I wanted to post this email here. As I read over it, I realized one of my prayers (I’m sure more than […]

Filed Under: TTTS Tagged With: Pregnancy, Twin, Twin to Twin Transfusion Syndrome

Hydrops fetalis caused by TTTS

July 29, 2014 By katbiggie Leave a Comment

If you have found this page because one of your twins has been diagnosed with hydrops fetalis caused by TTTS, I am very sorry. The prognosis is bleak. However, it is not over and there are cases in which laser surgery has reversed the hydrops. So, do your research, be informed, seek more opinions if […]

Filed Under: TTTS Tagged With: Heart failure, Hydrops fetalis, Kathryn, TTTS, Twin to Twin Transfusion Syndrome

An Interview… and awareness for TTTS

July 16, 2014 By katbiggie Leave a Comment

I don’t usually do this, but I really love the way Tammy gave me the opportunity to tell the world about TTTS and support for grieving moms… so I’d really love it if you took a listen. For at least a few minutes of it. katbiggie on Google+

Filed Under: Awareness and Education Tagged With: awareness, podcast, Twin to Twin Transfusion Syndrome

Happy 3rd Birthday Brady and Brenden – TTTS Survivors

July 1, 2014 By katbiggie Leave a Comment

TTTS Survivors

Happy 3rd Birthday to TTTS Survivors Brady and Brenden! Brady and Brenden actually turned 3 last Tuesday, 6/24/14 but I am a week late! I originally shared Brady and Brenden’s story in October 2012, so they were due for another shout out anyway! Here is the original post: Today we share my friend Brandi’s story.  […]

Filed Under: Double Survivors, TTTS Tuesday Tagged With: Surgery, TTTS, Twin, Twin to Twin Transfusion Syndrome

Stories from the TTTS Trenches {Jackalyn and Alexa}

June 11, 2014 By katbiggie 5 Comments

This week I’d like to highlight a story of my friend Andrea. Her twins were born too early, and neither survived. Since then, Andrea has been a major part of the TTTS Support Community, and each year organizes the effort to send out Mother’s Day Cards to moms from their TTTS angels. Sharing the stories […]

Filed Under: TTTS Tuesday Tagged With: double loss, Mothers Day, Pregnancy, TTTS, Twin to Twin Transfusion Syndrome

TTTS Support Team

May 26, 2014 By katbiggie Leave a Comment

TTTS Support Team

I remember when I saw the facebook post from Christina. The T.T.T.S Support Team was created in 2011 by a group of parents who have been affected by T.T.T.S. We remember the intense pain and worry we felt as we dealt with this disease and we would like to help other women who are finding […]

Filed Under: TTTS Tagged With: CARE Package, Support group, Twin to Twin Transfusion Syndrome

NJ Mom’s Club Raises over $10,000 for TTTS Foundation

May 13, 2014 By katbiggie Leave a Comment

TTTS Mom

TTTS Mom and friends raise a whole lot a money! So these moms have set the bar REALLY high for the TTTS community! I thought this was a great story, and I wanted to share it. If you are looking for ways to raise money for the Twin to Twin Transfusion Syndrome Foundation, it doesn’t […]

Filed Under: TTTS Tagged With: fundraising, TTTS, Twin, Twin to Twin Transfusion Syndrome

Blood Drive for TTTS

May 9, 2014 By katbiggie Leave a Comment

blood drive for TTTS

Most preemies need blood transfusions. So if you’re in Columbia, SC or anywhere near, come on out to the blood drive on Friday, May 16th. I think one of the most amazing things to come out of my journey with Twin to Twin Transfusion Syndrome (TTTS) is the relationship with other moms and to be […]

Filed Under: For the Community Tagged With: giving back, Pregnancy, Preterm birth, ReNee, TTTS, Twin to Twin Transfusion Syndrome

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