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TTTS Tuesday – Shauna and Cheyanne’s story

January 15, 2013 By katbiggie Leave a Comment

Today I am sharing the story of Barbra and her twins, who are both TTTS angels.

To tell her story, Barbra provided her journal entries from her pregnancy.  It is a very sad story and a reminder of why it is so important that we continue to raise awareness and fight for a cure!

June 1/09

     Today i had an ultrasound to find out how far along i am in my pregnancy.  I am 15 weeks preg with twins,wow twins there are no twins on either side of our family’s this is going to be a shock for some! lol,i already knew i was having twins not sure how or why i knew but i already told people i thought i was having twins.  i couldn’t wait to tell people i was right so when i walked into neal’s mom’s house to pick up shawn the first thing that came out of my mouth was “there’s 2 i was right.”

when i got home i phoned mom and told her i was right there is 2 she was shocked i told her before i thought it was lol:)then i had the agonizing wait to tell neal (he’s a trucker so i had to wait for his call).

july 17/09
     Today i have another ultrasound to make sure all is well with the babies,to find out the sex,and to see if they are identical or fraternal.when i got there they got me into the gown and lead me into the ultra sound room i was so excited to know the sexes i could hardly wait,so i kept on asking her do you know yet and she kept telling me no not yet. this u sound was taking forever and i was starting to get worried. she also had still not been able to tell me the sexes ,then about 1/2 hour in she said well twin A looks like a girl but she couldn’t see twin B she did a few more thing’s and then she said she would be right back as she had to go ask the doc if she had enough info.i was already worried i have never had an u sound take this long and for them to have to go ask the doc if they got enough info,and she still hadn’t been able to tell me baby B’s sex.

finally she came back in with a doc and he started to look at my babies.  everything was scary quiet in the room,but when he was done he looked at me and said there are a few things going on and he explained that they can’t see baby B because i have way to much fluid around the babies and that it looks like baby a might have a cyst on her ovary but he said that would go away after birth. it was from my hormones,then they said that i could get dressed but not to leave to wait in the waiting room as my doc was at the hospital and they were going to page him to talk to me. so i got dressed and sat in the waiting room for what seemed like forever,in that time they brought me a pic of my girls,i could see the doc that looked at the u sound and my doc talking it wasn’t seeming good. i was very nervous by this point.

my doc came and said we need to talk but not here so he took me into another room and told me there could be something really wrong and that they think it’s twin to twin transfusion syndrome but they weren’t 100% positive.  they were going to send me to vancover b.c. woman’s hos to have a better ultra sound done.

well i went home and phoned neal told him to come home we have to go,that night we sat at home and waited till morn because they told us not to come till afternoon they can’t fit me in till then.this was a long night i didn’t sleep needless to say.

july 18/09

well 8 am we are on our way to vancouver. thankfully neals mom stayed with shawn. the trip was agonizing for me i was so uncomfortable the whole time but when we were about an hour away from the hospital thing’s just didn’t feel right at all,and when we were about 10/15 min away from the hos it felt like the baby’s dropped and the uncomfortableness(back pain) was really bad now.  we made it to the hospital, found a parking spot and went in we went down the wrong hallway and then turned around and started to walk back. we got about 1/2 way down the wrong hallway when i stopped and said “omg neal” he said” what “as he turned around i then said “my water just broke” we rushed to labor and delivery and neal said to the nurses “her water just broke she’s only 21 weeks” the nurses told us to sign in so that is what we did then after that they took me into a delivery room got me dressed in a gow. ,i sat on the edge of the bed as the nurse left the room

It was just neal and me in the room at this point i looked at him and said “it’s too soon” he looked at me and said “we will get through this whatever happens” the nurse then returned and told me to lay back on the bed and that she is going to take my blood pressure.  when i laid back more water started to come out just then another nurse came in and started asking me questions about my health and pregnancy all i could say to her is “i am going to flood your bed!” i had so much fluid coming out of me (6 to 8 liters).  i had no control.  she ignored my warning just thinking i was going to release a little more she kept asking me questions i told her my paper is over on the table. i couldn’t answer her questions i was in my own world of thought.then it started to flood the floor.  she was now concerned and heading out the door they left me to lay in this for 15 min or so(disgusting),the nurse came back in with a wheelchair and said” we are taking you to a different room we can’t work in here now”  as she was laying out towels all over the floor.(i told her to apologize to the people who had to clean it up for me lol)

they took me to a new room and hooked me up to the blood pressure machine and checked my pressure then told me they were leaving again but if anything was wrong to push the red button.i laid there for a while then i started to feel contractions and that scared me because it just didn’t feel right no movement or anything i had the contractions for about 20 min then something didn’t feel right down there. neal knew by the look on my face something was wrong and told me to push the button so i did the nurses came back in the room i told her something was very wrong. when they moved the pad from between my legs i felt my baby come out and no crying, i looked over at neal and i knew what i felt was right because of the look on his face and he put his head in his hands i just knew,the nurses were trying to hide the fact i just had delivered a still born baby but i looked at the nurse and said “i just lost my baby didn’t i ” she looked at me with sadness in her eye’s and said “yes i am so sorry but you did”  i couldn’t say anything all i could do was cry.

the doctor then came into the room and said he was sorry but it was probably for the best because they would have been really sick babies had they survived and that i still had to deliver my other baby he then put his hand up inside me and pulled her out but he couldn’t get my placenta to come out it had gotten stuck but that they would give me a bit to see if my body would get rid of it on it’s own. but if not then i would have to have surgery(dnc) to remove it.well i waited and waited still having contractions then about 45 min later they came back and told me i was going to the O.R. to have my placenta removed.

when i woke they informed me they had to give me a blood transfusion as i almost died on the table.
i then spent 3 monitored day’s in the hos where we got to spend some time with our girls to say good bye. this was the most devastating thing i have ever gone through and i hope that my story will bring more awareness to this disease and maybe they will find a cure so no other family has to walk this dark path.
 TTTS angels

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katbiggie

Freelance writer at Kat Biggie Press
Alexa B, who blogs as "Kat Biggie" is a wife, mother, and writer. She has three children and one in heaven. She recently self published a book entitled "Sunshine After the Storm: A Survival Guide for the Grieving Mother" which is available on Amazon. She blogs about life after the loss of one of her twin daughters to TTTS, motherhood, all things parenting, advocacy, grief support and social good.

Latest posts by katbiggie (see all)

  • What to say when a baby dies ; words of comfort - October 31, 2019
  • Try listening to her, not fixing her – October 15th - October 15, 2019
  • Pregnancy & Infant Loss Awareness Book Bundle - October 3, 2019

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