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Understanding TTTS

December 10, 2015 By katbiggie 2 Comments

Today is my daughters’ 4th birthday. Sweet Tiny and Kathryn.

understanding TTTS

Happy 4th Birthday Tiny and Kathryn

But Kathryn is not here to share the day with us. Because my girls had stage 4 TTTS. Kathryn developed severe hydrops caused by TTTS, and developed heart and lung problems. She lived for two days, but could never be stabilized.

Understanding TTTS

December is also World TTTS Awareness Month. TTTS can be very difficult to explain. Understanding TTTS is also often challenging. There are so many elements that can differ from situation to situation. But it all starts the same.

I just found this video, by Dr. Larry Rand, a specialist at UCSF Fetal Treatment Center. He does an amazing job explaining TTTS in basic terms. He does not go into details at all about the complications that arise from unequal placental share (like hydrops and IUGR) but it’s still a great general explanation.

If you know someone pregnant with twins that share a placenta, please make sure they get in touch with an expert like Dr. Larry Rand.

Related Posts

  • Those Quiet MomentsThose Quiet Moments
  • Happy Birthday Tiny and Kathryn!Happy Birthday Tiny and Kathryn!
  • Surviving the Winds of ChangeSurviving the Winds of Change
  • World TTTS Awareness DayWorld TTTS Awareness Day
  • The TTTS Support Team Annual FundraiserThe TTTS Support Team Annual Fundraiser
  • Kathryn and Tiny’s Twin to Twin Transfusion StoryKathryn and Tiny’s Twin to Twin Transfusion Story
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katbiggie

Freelance writer at Kat Biggie Press
Alexa B, who blogs as "Kat Biggie" is a wife, mother, and writer. She has three children and one in heaven. She recently self published a book entitled "Sunshine After the Storm: A Survival Guide for the Grieving Mother" which is available on Amazon. She blogs about life after the loss of one of her twin daughters to TTTS, motherhood, all things parenting, advocacy, grief support and social good.

Latest posts by katbiggie (see all)

  • What to say when a baby dies ; words of comfort - October 31, 2019
  • Try listening to her, not fixing her – October 15th - October 15, 2019
  • Pregnancy & Infant Loss Awareness Book Bundle - October 3, 2019

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Filed Under: TTTS Tagged With: Tiny and Kathryn's birthday, TTTS, twinless twin

Comments

  1. Janine Huldie says

    December 10, 2015 at 6:20 pm

    Happy birthday to both your girls and sending extra love and hugs to you today, my friend <3
    Janine Huldie recently posted…Make Easy Cheesy Pepperoni Pinwheels with Perfect Dipping SauceMy Profile

    Reply

Trackbacks

  1. If only she could be here... - No Holding Back says:
    April 18, 2016 at 1:01 pm

    […] twin girls, they were afflicted by a disease of the placenta that affects identical twins. Twin-to-Twin Transfusion Syndrome (TTTS). Thankfully, because of advances in neonatal care (which has come about because of the March of […]

    Reply

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