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No Holding Back

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Twin To Twin Transfusion Syndrome (TTTS)

What is TTTS?

Twin to Twin Transfusion Syndrome

English: Twin to twin transfusion syndrome

English: Twin to twin transfusion syndrome (Photo credit: Wikipedia)

If you are carrying identical twins (share a placenta) and/or you have been diagnosed with TTTS, PLEASE reach out to the TTTS Foundation and get in touch with someone who has been through this!

You can also email me (katbiggie1@gmail.com)

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Information

The sad fact is that many OBs (even the Maternal Fetal Medicine Specialists) do not always have all of the information or the correct information. You need to reach out to someone who is an expert.

If I had, maybe I would have both of my girls!

For more information, please visit the TTTS Foundation website.

Support

There is a wide array of support for TTTS families.

Please know that you are not alone!

If you have suffered a loss, the TTTS Support Team is here for you! We would like to send you a care package. Please contact Christina@TTTsupport.com and put TTTS Support Team in the title.

If you are in Columbia, SC you can find our support group page at:

TTTS Support/ColumbiaSC

The Twin to Twin Transfusion Syndrome Foundation FB page

TTTS Newly Diagnosed

TTTS Tuesday

Bear with daisy

We share stories of life and loss, double, single, and no survival stories. Come read our stories and share your own if you’d like.

More  →

Graphics

Ill stop talking about ttts when there is no more ttts

ReNee at Random ReNee creates amazing graphics for all those who have been impacted by TTTS. View all she has made for me or visit her at her Random ReNee.

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The “Twinless Twin” Project

Tiny and Kathryn thing1and2

Raising a “twinless twin” can be both rewarding and challenging. Stay tuned for more on the “Twinless Twin” project.

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What You Said

  • Essay Writer on Let Them Grieve
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  • katbiggie on Stories from the TTTS Trenches {Jackalyn and Alexa}

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