Since it is December 11th and yesterday was Tiny’s (and Kathryn’s) first birthdays, and tomorrow is the one year anniversary since we lost Kathryn, I thought this was a great Tuesday to feature my own battle with TTTS.
Our daughters are monochorionic-diamniotic (Mo/Di) twins – one placenta, two sacs. Twin to Twin Transfusion Syndrome (TTTS) occurs in roughly 15-20% of Mo/Di twins, and sadly is the cause of more deaths of babies each year than SIDS, yet it is still relatively unknown and often not treated when and how it should be.
We were officially diagnosed with TTTS at 20W and 2 days during our regularly scheduled Anatomy ultrasound… Continue reading
We must capture those moments when something Amazing happens.
Memorialize it forever; in our hearts, on our camera, on our blogs… some place.
Today, something amazing happened.
Tiny pointed right up to one of the butterflies decorating her wall and said “butterfly.” (OK, so it came out “bee-fly” but she is speech delayed – cut her some slack!
For those of you who have followed my journey closely over the past two years, you understand the significance of this happening today. You see, today is the two year anniversary of the death of Tiny’s identical twin sister Kathryn. Butterflies have always been my “thing” to represent my daughter,… Continue reading
My TTTS Survivor is TWO!
Today is sweet Tiny’s 2nd Birthday. We celebrated on Saturday night with the family. It physically pained me to NOT put Kathryn’s name on the cake as well. But the thing is, I don’t want to take away from the joy and happiness of the day for my living twin daughter.
Look how tiny she was???
That little diaper was no bigger than a small sanitary pad, yet it engulfed her!
She fought hard to be here. Our road was long before we finally came home from the NICU (84 days!) But she did it. She is our amazing TTTS Survivor!
I am relieved that… Continue reading
I got up to check my email and do some other stuff, and I was a little freaked out when I opened my web browser and saw this:
I mean, in a way, it’s kind of cool, right? Google told me Happy Birthday. In another way, it really freaks me out. Google told me Happy Birthday.
It kind of made my day, and it kind of made me wonder what else Google knows about me! The answer is: a lot, my friends. Every site I’ve ever visited, every ad I’ve ever clicked, every search, every purchase. Google knows more about me than anyone in the world. And now it’s wishing… Continue reading
World TTTS Awareness Day 2013
Another year has passed and I’m not sure all that much has changed. Babies are still dying at alarming rates and so many babies are being born prematurely, some with severe disabilities, due to Twin to Twin Transfusion Syndrome. It has high costs on our society – on families and on medical costs.
I’m posting over at Fight TTTS today with a little more details on WHY this should matter to everyone. I’m closing comments here in the hopes that you will go read the other post! Please visit that post by clicking World TTTS Awareness Day 2013.
Today is Giving Tuesday
You can help WaterAid double their contributions by making a donation today. A WaterAid supporter challenged WaterAid and all of its supporters to raise $50,000 by today, #GivingTuesday. If we make that goal, every penny of the $50,000 will be matched!
I have written about WaterAid before and why I believe this is such an important cause to support. We live in a country where clean water is never even a consideration for most of us. We have access to drinking water that won’t kill us. We have running water for showers and baths and laundry… even watering our yards and washing our cars. Some countries… Continue reading
… of good forever friends can never be underestimated.
I write about one of my groups of forever friends in an essay publish in yet ANOTHER book. Yes friends, another book! So now we have Sunshine After the Storm, The Mother of All Meltdowns (currently on big time sale!) the free Gratitude Ebook, and now, I am excited to announce the Launch Day of The HerStories Project: Women Explore the Joy, Pain, and Power of Female Friendship. I am one of 50 contributors to this anthology of women’s friendship essays.
My contribution entitled “Birds of a Feather Flock Together” is an essay about my group of… Continue reading
So, as you know, I’ve been published in a few books lately. The Mother of All Meltdowns is a really great book, detailing real stories of real moms in their worst moments. None of us are perfect, and through these stories (some that will make you laugh, some will make you cry) 30 of us share real life “mom” moments.
Because we want you to get one for yourself and any other moms you know, we’re offering HUGE discounts through Christmas!
Read on for more information:
Have You Ever Had the Mother of all Meltdowns?
I had to laugh when I read the Dose Girls’ post today: Is That Turkey Disguised as Elton John? You see, my son had to do exactly the same project for school. The gist of it is, they were sent home with a drawing of a turkey, and they were to “disguise” it so that it would not be recognizable, and therefore, saved from Thanksgiving.
Hide the Thanksgiving Turkey!
Now the project was fun, and we had a good time decorating it, but I kept wondering, “Why, exactly, are we sending the message to our kids that they should HIDE the turkey?” I mean, it was a fun project… Continue reading