Living With Purpose
Multiples Illuminated – a book review Did you just discover that you are pregnant . . . with twins, triplets or more? I remember EXACTLY the moment that the ultrasound technician told me there were TWO heart beats. TWO? I had a just-turned-four-year-old and a 16-month-old at home, and this was a surprise I was […]
March and April are always pretty difficult months for me. It’s March for Babies time, and I am dedicated and committed to raising as much money as I can each year. But with this responsibility (and let it be known, this is my passion, but I also consider it a responsibility, which I’ll explain) comes […]
We talk about World Prematurity Awareness Day because prematurity can happen to any baby. All causes for preterm birth are not even known, but there are ways you can be prepared and reduce your risk of going into preterm labor. The idea of having micro preemie babies never even crossed my radar. In my situation, […]
This is our FOURTH year raising money for the March of Dimes with Team Charis and Kat. Each year gets a little more difficult to raise the money. Each year I continue to beg and plead to bring in as much money a I can. And each year I am blessed by the number of […]
A few days ago, my sweet survivor baby Tiny asked if she could rest with my “Kathryn Bear.” I reluctantly said yes. This Kathryn bear is so very special to me. It was hand made by a volunteer for the Molly Bears organization, and it weighs exactly the same amount that my Kathryn did when […]
My friend Mara has adopted three beautiful children from China. She and her husband (and maybe this is a common adoption term?) call the day they are finally able to get their sweet child “Gotcha Day.” I love that. Three years ago today felt like our “Gotcha” Day. Three years ago today we finally brought […]
Melissa was so sweet when she sent me her story. She said that March 5th is the boys birthday, and if I could, it would mean a lot to have their story around that day. Of COURSE I could share it this week! A bittersweet birthday, one here, one in heaven, but we celebrate both […]
I have never taken too much of an interest in the debate over breast feeding vs. formula. I was breastfed, and I intended to at least try with my own children (although I never realized how difficult it could be!) but I knew plenty of people my age who were exclusively formula fed babies and […]
Today we hear from Laura D. who is sharing her TTTS journey with us. Her girls Elena and Diana are double survivors (thankfully!) but they still had a tough journey to make it here alive. Twin to Twin Transfusion Syndrome is never an easy battle. Thank you Laura for sharing your girls and your story […]
I am so excited about this NICU Moms photo contest with WeMontage! One of the things I really want to write more about is what life was like when we were in the NICU. I talk about TTTS, their birth, and of course Kathryn’s death, the importance of doing what we can to reduce prematurity […]
We must capture those moments when something Amazing happens. Memorialize it forever; in our hearts, on our camera, on our blogs… some place. Today, something amazing happened. Tiny pointed right up to one of the butterflies decorating her wall and said “butterfly.” (OK, so it came out “bee-fly” but she is speech delayed – cut […]
This week Shann tells the story of her boys’ Penn and Cruz and their journey through Twin to Twin Transfusion Syndrome. It’s always strange reading these stories because sometimes they can be so similar. Like when Shann talks about her experience of being on continuous monitoring in the hospital, and how once a nurse had […]
World Prematurity Day Today we’ll be joining hundreds of thousands of people in making our voices heard about prematurity. If you’ve ever even had to spend ONE day in a NICU, you know it is not a fun place to be. Imagine spending 25 days there? Imagine EIGHT FOUR. That’s how long Tiny spent in […]
My Tiny is 18 months old today. In 18 months she has grown into her own independent, happy go lucky, contemplative, TINY human being. Although born 10 weeks early at only 1lb 10 oz, she finally made the growth chart last month when she hit 17 lbs. She IS a miracle. A miracle that the […]
