Living With Purpose
Today is my daughters’ 4th birthday. Sweet Tiny and Kathryn. But Kathryn is not here to share the day with us. Because my girls had stage 4 TTTS. Kathryn developed severe hydrops caused by TTTS, and developed heart and lung problems. She lived for two days, but could never be stabilized. Understanding TTTS December is […]
Emotions. They can be weak, strong, good, bad. We go through highs and lows, gladness and madness. And sometimes, in a really bizarre scenario, all of them at the same time. I feel that way often. Happy, mad, glad, sad, all melded together. I feel that way when I glance up and see the picture […]
It’s been awhile since I’ve shared about Twin To Twin Transfusion Syndrome (TTTS) on my blog. Since that’s why it all began, it seems only right to share periodically. Additionally, the TTTS Support Team is trying to raise some funding for some projects, and I’d like to highlight their efforts. (More on them at the […]
My friend Mara has adopted three beautiful children from China. She and her husband (and maybe this is a common adoption term?) call the day they are finally able to get their sweet child “Gotcha Day.” I love that. Three years ago today felt like our “Gotcha” Day. Three years ago today we finally brought […]
Melissa was so sweet when she sent me her story. She said that March 5th is the boys birthday, and if I could, it would mean a lot to have their story around that day. Of COURSE I could share it this week! A bittersweet birthday, one here, one in heaven, but we celebrate both […]
Jodie and I connected through the TTTS Survivors with Guardian Angels group. Someone asked me one time what that means. It means we have one twin that survived, and one twin that is the surviving twins guardian angel. Just like Kathryn is to Tiny, Cole is to Cameron. Jodie’s angel baby, Cole, also the recipient, […]
Three years ago… December 10, 2011. I woke up in the hospital bed at about 6am like normal. Shift change. The night nurse checked on me one last time, and I knew I wouldn’t see anyone again for awhile. Since it was Saturday morning, I knew I would not have the normal troop of medical […]
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If you are a TTTS parent and you don’t know about Teeny Tears, you need to learn about it. It’s a fabulous service organization to any one who has lost a baby… you’ll read more farther down. I want to feature the founder and her TTTS story, and to say that I have finally brought […]
As is the case with many of the TTTS moms I have become friends with, I met Wendy through the TTTS Grief Support Group, or maybe it was the Survivors with Guardian Angels. Either way, we both lost one twin and got to take one twin home. Wendy has taken her story and written a […]
Today, August 19th, is the 5th Annual “Day of Hope.” This day to honor and celebrate babies and children lost was begun by CarlyMarie and Project Heal in 2008. Visit CarlyMarie’s facebook page for a wide variety of banners, cover and profile images for infant, baby, pregnancy, and child loss. Carly Marie began Project Heal […]
I’m so torn between wanting to go to bed right now and wanting to just write, write, write about a place I belong. As a friend’s husband said tonight, at the end of the day, that’s what we are all looking for. I believe he is correct. My heart is full. My mind is racing. […]
My Tiny is 18 months old today. In 18 months she has grown into her own independent, happy go lucky, contemplative, TINY human being. Although born 10 weeks early at only 1lb 10 oz, she finally made the growth chart last month when she hit 17 lbs. She IS a miracle. A miracle that the […]
ne year ago today, we packed up all of our belongings and left the NICU for the very last time. After twelve LONG weeks, we were taking our Tiny home. One of our twins was coming home. The other had gone to be with God 11 weeks and 5 days earlier. Birth – 1 lb […]
