This is my period of grief. In just a few days we will celebrate the third birthday of my identical twin daughters, and just two days later, mourn the 3 year anniversary of the loss of one of them. I try to fill the birthday with joy and celebrate my survivor Tiny as much as […]
December 7th is World TTTS Awareness Day
Awareness Saves Lives! TTTS is a disease of the placenta affecting identical twins who share a placenta. While this may not directly impact you, perhaps you know someone who is pregnant with ID twins? If you do, please share this information! Awareness saves lives.
Are You At Risk for Preterm Birth? World Prematurity Day
When I found out I was pregnant with my third child, which surprisingly turned out to be twins, I never thought twice about having a preterm baby. I had carried two babies to 40 weeks and 1 day each. The first had come on his own (thankfully so, because he had a nukal chord and […]
TTTS Double Survivors – Benjamin and JD
One of the best things about the TTTS Community is the level of support, commitment, and dedication we have to each other. Each time I share a story, we hope to spread awareness, education, and hope. TTTS is a monster. No matter what your outcome, it’s a bitch. Plain and simple. Today Shasta tells about […]
Back to the NICU…
Bee beeep beep. Bee beep beep. Bee beeeep beeeeeeeep. Ding ding ding diiiiing. Ding ding ding diiing. Ding ding ding diiiiing. Two years have passed, but the noises are the same. The sounds of ventilators, heart rate monitors, oxygen saturation monitors, and more. I walked into the dim Neonatal Intensive Care Unit (NICU) with a […]
Something Amazing {Kathryn Day}
We must capture those moments when something Amazing happens. Memorialize it forever; in our hearts, on our camera, on our blogs… some place. Today, something amazing happened. Tiny pointed right up to one of the butterflies decorating her wall and said “butterfly.” (OK, so it came out “bee-fly” but she is speech delayed – cut […]
18 Months
My Tiny is 18 months old today. In 18 months she has grown into her own independent, happy go lucky, contemplative, TINY human being. Although born 10 weeks early at only 1lb 10 oz, she finally made the growth chart last month when she hit 17 lbs. She IS a miracle. A miracle that the […]
{Wordless Wednesday} My Amazing Preemie!
No one ever prepared me for what life would be like to have twins 10 weeks early. One, a 1lb 10 oz micro preemie. The other, much larger, but much sicker. And then Kathryn left us. I can tell you that living in the NICU for 84 days was hell on earth. Thankfully that is […]
Take Heart
ne year ago today, we packed up all of our belongings and left the NICU for the very last time. After twelve LONG weeks, we were taking our Tiny home. One of our twins was coming home. The other had gone to be with God 11 weeks and 5 days earlier. Birth – 1 lb […]
