March and April are always pretty difficult months for me. It’s March for Babies time, and I am dedicated and committed to raising as much money as I can each year. But with this responsibility (and let it be known, this is my passion, but I also consider it a responsibility, which I’ll explain) comes […]
Elena and Diana’s story
Today we hear from Laura D. who is sharing her TTTS journey with us. Her girls Elena and Diana are double survivors (thankfully!) but they still had a tough journey to make it here alive. Twin to Twin Transfusion Syndrome is never an easy battle. Thank you Laura for sharing your girls and your story […]
Is Heaven for Real?
This is my period of grief. In just a few days we will celebrate the third birthday of my identical twin daughters, and just two days later, mourn the 3 year anniversary of the loss of one of them. I try to fill the birthday with joy and celebrate my survivor Tiny as much as […]
December 7th is World #TTTS Awareness Day
Better late than never. I posted a bit on facebook today, but I felt like I couldn’t let the date completely pass without mentioning this day. TTTS, Twin to Twin Transfusion Syndrome,is a disease of the placenta affecting identical twins who share a placenta. While this may not directly impact you, perhaps you know someone […]
December 7th is World TTTS Awareness Day
Awareness Saves Lives! TTTS is a disease of the placenta affecting identical twins who share a placenta. While this may not directly impact you, perhaps you know someone who is pregnant with ID twins? If you do, please share this information! Awareness saves lives.
Cheated in the final moments {infant loss}
It never occurred to me to shop for a casket for the baby. Perhaps because I was hospitalized during those final weeks, and, while the situation was grim, I still held on to a shred of hope. I could not allow my mind to go there. I could not plan for her death. For their […]
When the unexpected happens {TTTS}
I was cleaning out my email and I came across a trail of emails I sent out to friends and family, starting on September 29, 2011. We had just received our TTTS diagnosis. I wanted to post this email here. As I read over it, I realized one of my prayers (I’m sure more than […]
Hydrops fetalis caused by TTTS
If you have found this page because one of your twins has been diagnosed with hydrops fetalis caused by TTTS, I am very sorry. The prognosis is bleak. However, it is not over and there are cases in which laser surgery has reversed the hydrops. So, do your research, be informed, seek more opinions if […]
An Interview… and awareness for TTTS
I don’t usually do this, but I really love the way Tammy gave me the opportunity to tell the world about TTTS and support for grieving moms… so I’d really love it if you took a listen. For at least a few minutes of it.
Happy 3rd Birthday Brady and Brenden – TTTS Survivors
Happy 3rd Birthday to TTTS Survivors Brady and Brenden! Brady and Brenden actually turned 3 last Tuesday, 6/24/14 but I am a week late! I originally shared Brady and Brenden’s story in October 2012, so they were due for another shout out anyway! Here is the original post: Today we share my friend Brandi’s story. […]
Stories from the TTTS Trenches {Jackalyn and Alexa}
This week I’d like to highlight a story of my friend Andrea. Her twins were born too early, and neither survived. Since then, Andrea has been a major part of the TTTS Support Community, and each year organizes the effort to send out Mother’s Day Cards to moms from their TTTS angels. Sharing the stories […]
TTTS Support Team
I remember when I saw the facebook post from Christina. The T.T.T.S Support Team was created in 2011 by a group of parents who have been affected by T.T.T.S. We remember the intense pain and worry we felt as we dealt with this disease and we would like to help other women who are finding […]
NJ Mom’s Club Raises over $10,000 for TTTS Foundation
TTTS Mom and friends raise a whole lot a money! So these moms have set the bar REALLY high for the TTTS community! I thought this was a great story, and I wanted to share it. If you are looking for ways to raise money for the Twin to Twin Transfusion Syndrome Foundation, it doesn’t […]
Blood Drive for TTTS
Most preemies need blood transfusions. So if you’re in Columbia, SC or anywhere near, come on out to the blood drive on Friday, May 16th. I think one of the most amazing things to come out of my journey with Twin to Twin Transfusion Syndrome (TTTS) is the relationship with other moms and to be […]
