Over the past few days, weeks, months I have connected with so many mothers who have fought the battle with TTTS. We all have different stories and different outcomes. Some have two (or more!) survivors, some have no survivors, some have survivors and angels… but sadly, there is one thing that I find many – not all, but many of us have in common.
Our doctors were not informed. Be informed!
Or if they were informed, they chose not to do any new research or offer all options to the patient.
Or somebody just plain and simple dropped the ball. For example, in my case, we rotate through the doctors in the practice. I saw a different doctor almost each appointment. And I think in my case, that was definitely not good. One of the doctors told me after the fact that “she did not know why they did not do an ultrasound at 16 weeks” because they normally do with twins.
Sigh. Big sigh.
It is frustrating to hear these stories. And it makes me angry.
But I can do something about it. It’s called awareness and education.
So I’m going to start TTTS Tuesdays. After all, I want to spread as much awareness as possible, so the focus of my Tuesday posts will be TTTS.
The first thing I want to make sure is that everyone is aware of the TTTS Foundation. If you ever know of someone who is pregnant with identical twins, please MAKE them go to this site and read the information there. It could save their babies lives!