Welcome to No Holding Back : Fighting Twin to Twin Transfusion Syndrome (TTTS)
This site is designed to bring you information and resources about TTTS to help us spread awareness and fight this terrible syndrome. You may share your journey as well!
I am not a medical professional and do encourage you to seek professional advice if you have been diagnosed with TTTS.
If you are pregnant with identical twins, I URGE you to contact the TTTS Foundation to receive critical information and important questions to ask your doctor!
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- TTTS Tuesday provides stories of other families’ journeys.
- Resources – other websites and useful information.
- NICU – Preparing for a long NICU stay.
- Training materials – designed for hospital staff dealing with infant loss.
- Grief resources – in the case you lose your baby(ies), there are many resources to help you.
Please look around the site. We hope you will find useful information and resources. We would also like to share your story if you would like to share the details of your TTTS journey. And finally, if you have access to any news or information that impacts TTTS, please share it with us so that we can include the information!
If you have any questions or need information, you may contact me at katbiggie1@gmail.com