I’ve got a lot of sentiments and emotions about this. I’m feeling guilty that I haven’t been advocating as hard or frequently lately for TTTS awareness. It is the primary reason, after all, that I started this blog. That, and to survive the grief of losing one of our daughters because of Twin to Twin […]
Understanding TTTS
Today is my daughters’ 4th birthday. Sweet Tiny and Kathryn. But Kathryn is not here to share the day with us. Because my girls had stage 4 TTTS. Kathryn developed severe hydrops caused by TTTS, and developed heart and lung problems. She lived for two days, but could never be stabilized. Understanding TTTS December is […]
World TTTS Awareness Day
Today is World TTTS Awareness Day. December is TTTS Awareness Month. Twin to twin transfusion syndrome (TTTS) is a disease of the placenta that affects identical twin pregnancies (or higher gestations) who share a placenta (monochorionic). The shared placenta contains abnormal blood vessels which connects the umbilical cord and circulations of the twins. The events in […]
When the Unexpected Happens {TTTS}
I was cleaning out my email and I came across a trail of emails I sent out to friends and family, starting on September 29, 2011. We had just received our TTTS diagnosis. I wanted to post this email here. As I read over it, I realized one of my prayers (I’m sure more than […]
The TTTS Support Team Annual Fundraiser
In 2011 a group of parents of identical twins started banding together, united in the grief over the death of their child(ren) due to Twin to Twin Transfusion Syndrome – TTTS. We had firsthand knowledge of the dark, desperate, isolating and confusing days and months after the death of a baby. In our desire to […]
Kathryn and Tiny’s Twin to Twin Transfusion Story
It’s been awhile since I’ve shared about Twin To Twin Transfusion Syndrome (TTTS) on my blog. Since that’s why it all began, it seems only right to share periodically. Additionally, the TTTS Support Team is trying to raise some funding for some projects, and I’d like to highlight their efforts. (More on them at the […]
Micah and Spencer’s Story
Melissa was so sweet when she sent me her story. She said that March 5th is the boys birthday, and if I could, it would mean a lot to have their story around that day. Of COURSE I could share it this week! A bittersweet birthday, one here, one in heaven, but we celebrate both […]
National Wear Red for Healthy Hearts Day 2015
If you’ve been following this blog, or if you’re involved with ANY of the TTTS Facebook groups, you know Marcel and his adorable girls, Kiera and Charlie. If you’ve been following their story, you know that Kiera had to recently have open heart surgery to fix her heart from Congenital Heart Disease (CHD). Today is […]
Cameron and Cole {TTTS Tuesday}
Jodie and I connected through the TTTS Survivors with Guardian Angels group. Someone asked me one time what that means. It means we have one twin that survived, and one twin that is the surviving twins guardian angel. Just like Kathryn is to Tiny, Cole is to Cameron. Jodie’s angel baby, Cole, also the recipient, […]
Call for Submissions!
I have made a valiant effort the last three years to try to bring awareness to Twin to Twin Transfusion Syndrome (TTTS) through a weekly series – TTTS Tuesday. In these, I shared stories about TTTS journeys. The many very different journeys. I’ve run out of new stories! If you have lived through TTTS, I […]
December 7th is World #TTTS Awareness Day
Better late than never. I posted a bit on facebook today, but I felt like I couldn’t let the date completely pass without mentioning this day. TTTS, Twin to Twin Transfusion Syndrome,is a disease of the placenta affecting identical twins who share a placenta. While this may not directly impact you, perhaps you know someone […]
Twinless Twin {Wordless Wednesday}
The Twinless Twin Project – with images by Random ReNee. It’s in the UN reality where I find my peace. The Twinless Twin project – an effort to smile when we want to cry.
TTTS Awareness Month
I can’t believe we are already embarking on December. This year has flown by. December is a big month for the TTTS Community. It’s our Awareness Month. And our awareness day is December 7th. What is TTTS?
When the unexpected happens {TTTS}
I was cleaning out my email and I came across a trail of emails I sent out to friends and family, starting on September 29, 2011. We had just received our TTTS diagnosis. I wanted to post this email here. As I read over it, I realized one of my prayers (I’m sure more than […]
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