Living With Purpose
If you have found this page because one of your twins has been diagnosed with hydrops fetalis caused by TTTS, I am very sorry. The prognosis is bleak. However, it is not over and there are cases in which laser surgery has reversed the hydrops. So, do your research, be informed, seek more opinions if […]
I am constantly searching for news about TTTS that I can share with you all. While this is an incredibly sad story, it demonstrates the commitment that TTTS parents have to helping others who are in this journey, and in our commitment to finding answers. Maybe even a cure one day. This story touched me […]
I remember when I saw the facebook post from Christina. The T.T.T.S Support Team was created in 2011 by a group of parents who have been affected by T.T.T.S. We remember the intense pain and worry we felt as we dealt with this disease and we would like to help other women who are finding […]
TTTS Mom and friends raise a whole lot a money! So these moms have set the bar REALLY high for the TTTS community! I thought this was a great story, and I wanted to share it. If you are looking for ways to raise money for the Twin to Twin Transfusion Syndrome Foundation, it doesn’t […]
I feel quiet and still this week. The air feels like it is made of thick jelly, and I’m struggling to breathe. Each step takes effort. The last few weeks have exhausted me, drained me, made me proud, made me happy, made me sad. While we accomplished something wonderful through our efforts for the March […]
Yesterday I came across an article about Kasey-Rae Chambers and her twin daughters Hallie, left, and Harlow. Kasey-Ray was diagnosed stage 3 at 16 weeks, and she and her girls underwent fetoscopic laser surgery. The surgery was successful, and although the twins were born at 28 weeks and spent two months in Neonatal intensive care […]
The TTTS Walk for Life March 8th – St. Joseph Park, St. Joseph, TN. Brooke Myrick and family are hosting the Walker and Willis Birthday Walk for Life. Sadly, many of us who have gone through Twin to Twin Transfusion Syndrome know exactly what it is like to have a Twinless Twin. I have a […]
Many families are very concerned about the neurological development of their twins after suffering Twin to Twin Transfusion Syndrome (TTTS.) There is good news: a new report just released this week indicates that most twins who undergo fetoscopic laser surgery for TTTS will have normal neurodevelopment by the age of two. Maternal-fetal medicine and clinical […]
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Sharing stories of those who have experienced Twin to Twin Transfusion Syndrome (TTTS) is critical, but so is sharing information about TTTS. This video was created by a close friend of mine, ReNee. Her twin daughters (who will be featured in an upcoming TTTS Tuesday!) were born at 28 weeks and spent months in the […]
I know I am a day late for TTTS Tuesday. Please forgive me, it has been nothing but insanity around here. This will be the last post before Christmas. Today’s feature is in memory of Tyler, a TTTS baby born sleeping on December 15, 2010. His mother, Christina, founder of the TTTS Support Team, wrote […]
TTTS Survivor Yes, she is. She fought hard to be here, and she deserves every moment of joy this life can bring her. My girls, Kathryn and Charis were born on December 10, 2011. One day after my 35th birthday. Two days later, Kathryn, who had severe hydrops and congenital heart disease caused by the […]
World TTTS Awareness Day 2013 Another year has passed and I’m not sure all that much has changed. Babies are still dying at alarming rates and so many babies are being born prematurely, some with severe disabilities, due to Twin to Twin Transfusion Syndrome. It has high costs on our society – on families and […]
Did you know that December is International TTTS Awareness Month? Well, you do now! December is also the month that my girls were born. My survivor will celebrate her 2nd Birthday on December 10th. Kathryn’s Angelversary is December 12th. While I will always grieve the loss of my daughter, I also recognize that advances in […]
