ne year ago today, we packed up all of our belongings and left the NICU for the very last time. After twelve LONG weeks, we were taking our Tiny home. One of our twins was coming home. The other had gone to be with God 11 weeks and 5 days earlier. Birth – 1 lb […]
This Girl is On Fire!
It is such an amazing honor to be an Ambassador Family for the March of Dimes. Through this, I am able to share awareness of Twin to Twin Transfusion Syndrome and actively take part in an organization that has the know how and the influence to help us fight this terrible disease. This morning I […]
Will I Ever Be Content?
I have been struggling a lot this last week. I don’t know why. Nothing in particular has triggered it, that I can think of beyond the fact that I miss my baby girl so, so much. I have so very much to be thankful for, yet I am not content. I want FOUR children. […]
Hey you! Yes, I’m Talking to YOU!
Good morning all! It is a chilly, overcast Thursday morning, but I feel good! I have just given my first speech as the SC Midlands Region March of Dimes Ambassador Family at a Real Estate Awards Breakfast that the March of Dimes sponsors locally each year. I may have rambled a bit, but I think […]
Hey you! Yes, I'm Talking to YOU!
Good morning all! It is a chilly, overcast Thursday morning, but I feel good! I have just given my first speech as the SC Midlands Region March of Dimes Ambassador Family at a Real Estate Awards Breakfast that the March of Dimes sponsors locally each year. I may have rambled a bit, but I think […]
World Prematurity Day: Tiny and Kathryn
World Prematurity Day 2012 Today is World Prematurity Day (hope you are wearing purple!) Our girls were born at 30 weeks and 5 days. To most people that seems really early. To someone who has has had a 24/26/28 weeker, anything beyond 30 weeks is where you hope to get. But our girls were not […]
The First Time We Held Hands
I remember the first time your tiny little fingers wrapped around mine. You were four days old. Thus far, you only knew life in my womb, with your twin, and in the NICU, alone. Save for the NICU nurses and the loyal family and friends who came to you, prayed for you, hoped for you. […]
PREEMIE Reauthorization Act (S. 1440/H.R. 2679)
PLEASE TAKE THIS EASY, EASY STEP! March of Dimes Prevention activities We advocate for prevention and wellness initiatives. Preventing prematurity is our current national campaign. Areas of focus also include newborn screening and immunizations. I am copying and pasting this information directly from the March of Dimes Advocacy website. I do not claim […]
TTTS Tuesday – Kiera and Charlie’s Story
Today’s post comes from someone I have become friends with through several TTTS support groups on Facebook. His story has a happy ending, but demonstrates that even those families who have both twins survive still go through hell while fighting this disease. Marcel’s story is also different because he is in the UK. TTTS, like […]
6 Months Ago Today…
At 8:53pm tonight, it will be exactly six months since I held my beautiful Kathryn as she took her last breaths and returned to God. There’s not one second of any day that I don’t think about her and miss her, that I don’t feel cheated out of something, that I don’t wish that I […]
