This is my period of grief. In just a few days we will celebrate the third birthday of my identical twin daughters, and just two days later, mourn the 3 year anniversary of the loss of one of them. I try to fill the birthday with joy and celebrate my survivor Tiny as much as […]
When the unexpected happens {TTTS}
I was cleaning out my email and I came across a trail of emails I sent out to friends and family, starting on September 29, 2011. We had just received our TTTS diagnosis. I wanted to post this email here. As I read over it, I realized one of my prayers (I’m sure more than […]
Happy 3rd Birthday Brady and Brenden – TTTS Survivors
Happy 3rd Birthday to TTTS Survivors Brady and Brenden! Brady and Brenden actually turned 3 last Tuesday, 6/24/14 but I am a week late! I originally shared Brady and Brenden’s story in October 2012, so they were due for another shout out anyway! Here is the original post: Today we share my friend Brandi’s story. […]
TTTS Double Survivors – Benjamin and JD
One of the best things about the TTTS Community is the level of support, commitment, and dedication we have to each other. Each time I share a story, we hope to spread awareness, education, and hope. TTTS is a monster. No matter what your outcome, it’s a bitch. Plain and simple. Today Shasta tells about […]
NJ Mom’s Club Raises over $10,000 for TTTS Foundation
TTTS Mom and friends raise a whole lot a money! So these moms have set the bar REALLY high for the TTTS community! I thought this was a great story, and I wanted to share it. If you are looking for ways to raise money for the Twin to Twin Transfusion Syndrome Foundation, it doesn’t […]
Identical Twins were ONE person
I found this video on YouTube as I was searching around. TTTS videos often pop up as recommended for me. I thought this was a really good, short, and informative video about TTTS. Even though I knew it, I’d never heard it voiced out loud by a medical professional… identical twins are one person. It’s […]
TTTS Tuesday: Heatherly Rose and Winter Lille
I met Taylor in the TTTS Grief Support group. It was shortly after she lost her girls and she was devastated. Today we honor her girls by sharing their story. Taylor’s experience shows how suddenly TTTS can occur and further emphasizes why earlier and more frequent ultrasounds are so important in multiples pregnancies. Heatherly […]
The First Time We Held Hands
I remember the first time your tiny little fingers wrapped around mine. You were four days old. Thus far, you only knew life in my womb, with your twin, and in the NICU, alone. Save for the NICU nurses and the loyal family and friends who came to you, prayed for you, hoped for you. […]
The Dreaded “Year of Firsts”
We all have ways of measuring things, passing time, marking key events. When you go through something as horrific as TTTS and infant loss, or the loss of anyone you love, there are so many dates, events, memories. When it was diagnosed, when we had procedures, when the babies were born. When Kathryn died. I dreaded […]
