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No Antidote

November 8, 2012 By katbiggie 7 Comments

November 8th.  One year ago today I was anxiously awaiting my weekly appointment to see Dr. Browne.  I was just over 26 weeks pregnant with the girls, and the week before had not been a good appointment.

I reflected on what the doctor had told us at the last appointment.  Kathryn was getting worse each week.  The fluid continued to build up in her little body, her heart was not pumping well, the entire right side was not functioning, her lungs were not growing because the fluid in her belly was taking up too much space.  It seemed like there was very little we could do to help her.  No Antidote.  No magic solution.  And I felt like we were just waiting for her to die.  Twin to Twin Transfusion Syndrome (TTTS) was killing my babies.

At the same time, the little twin, Baby B was growth restricted, not growing quickly at all, and still only the size of a 22 weeker even though we were at 25 weeks.  Although she still maintained a visible bladder (great sign) and had just about 2 cm of amniotic fluid in her sac, she was shrink wrapped, meaning that the membrane separating the two babies was literally wrapped around her like saran wrap.

At the 25 week appointment, Dr. Browne told us about the options to consider.  Option 1 – the next visit we could do another amnio reduction, removing some of the fluid from Kathryn’s sac to make more room for Baby B and to relieve the pressure on Kathryn.  He would probably also draw more fluid out of Kathryn’s belly.  This always caused a risk of pre-term labor, and at this point, neither baby was likely to survive.

Option 2.  We could choose to go to the Children’s Hospital of Philadelphia (CHOP ironically) and have the cord ligated to Kathryn, terminating her in the hopes that it would allow Baby B to thrive.  I immediately and emphatically told him that this was NOT an option I would be willing to consider.

We left the doctors office feeling so heartbroken.  Now, a week later, we were going back, and I was full of hope that a miracle had occurred and that both babies would be doing well.  I could still feel lots of movement and activity, but I could not tell if I felt one baby or two.

I packed a bag and took it with me this time, in the hopes that I would not need it.  The last two times I was hospitalized I had been completely unprepared.

We arrived and waited.  We were called back by a different sonographer.  Dr. Browne had been called to an emergency at the hospital, but she was going to go ahead and go through the weekly routine.

As she was going along, I was relieved to see that Kathryn was still active and happy as could be, moving around, with a good, steady heartrate.  Baby B still had a visible bladder, she had grown just a little bit, but her fluid levels had dropped under 2cm.  And the sonographer threw out some new terms I hadn’t heard.  Something about her dopplers not looking good, and something about the end flow…

She left to call Dr. Browne, and upon her return, told us that Dr. Browne wanted me to meet him at the hospital for admission.  Again.  This time, it was for the little baby.  I was scared.  My husband was scared.

I was admitted to the Labor and Delivery ward for the 3rd time of this pregnancy.  It would be the last.

On the afternoon of November 8th, I will never forget Dr. Browne standing at the foot of my bed, explaining to me that he admitted this time to have the babies.  The biggest issue was that Baby B developed Reverse End Diastolic Flow.  Basically, her fluids were not pumping to her as they should be, and sometimes were even going in reverse.

Baby B was now in charge.  They would continue to watch her, and she would determine when we delivered.

So, I was hooked up to the heart rate monitors, which was such a lengthy process because Baby B was so small they often had a difficult time finding her heart rate, and Kathryn had so much fluid that her heart rate resonated everywhere.

They hooked me up to an IV, gave me another dose of lung surfactant steroids, and then we waited.

And what happened next really was a miracle.  The babies both stabilized enough for me to continue to remain pregnant.  Each day pregnant at this stage was a blessing.  Each 24 hours in the womb equaled approximately 1 week in the NICU. 

Hours turned into days.  Days turned into weeks.  I would lay in that bed for 32 days before the babies decided they were ready… leaving my 4 year old and my 20 month old and my husband to fend for themselves.  Except something else happened.  My family and friends showed us how much they loved us.  You can read about my Gratitude to them.

But November 8th will always be a day of significance to me.

It was also the beginning of 32 days that I was able to enjoy my Kathryn, listening to her heart beat, watching her on ultrasounds, feeling her move about, talking to her.  For that, I am very Thankful.

This ultrasound was taken on 10/14/11.  Kathryn is on the right side.  The black that you can see inside the white arc (left side of the image of Baby A) is the fluid inside her abdomen.  You might notice she is sucking her little thumb.  (right side of the image is her head, thumb in mouth.)  You can see that Baby B already had significantly less fluid around her and is looking a little squashed.

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katbiggie

Freelance writer at Kat Biggie Press
Alexa B, who blogs as "Kat Biggie" is a wife, mother, and writer. She has three children and one in heaven. She recently self published a book entitled "Sunshine After the Storm: A Survival Guide for the Grieving Mother" which is available on Amazon. She blogs about life after the loss of one of her twin daughters to TTTS, motherhood, all things parenting, advocacy, grief support and social good.

Latest posts by katbiggie (see all)

  • What to say when a baby dies ; words of comfort - October 31, 2019
  • Try listening to her, not fixing her – October 15th - October 15, 2019
  • Pregnancy & Infant Loss Awareness Book Bundle - October 3, 2019

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Filed Under: grief, TTTS Tagged With: baby loss, twins

Comments

  1. Karen says

    November 8, 2012 at 2:40 pm

    I am so glad that you are writing about all of this. Even though it doesn’t change the outcome, I am learning more about what you went through every day (and J and the kids). I am truly in awe of your courage and glad to be able to call you my friend!

    Reply
    • Kat Biggie says

      November 8, 2012 at 3:18 pm

      Thanks Karen! I appreciate the fact that you keep coming back and reading about it all! I am so glad to have you too!

      Reply
  2. Mothering From Scratch says

    November 9, 2012 at 1:05 pm

    {Melinda} I am so sorry you lost your sweet girl. Thank you so much for honoring and valuing that little life for as long as you had her.

    Reply
    • Kat Biggie says

      November 9, 2012 at 5:11 pm

      Thank you Melinda!

      Reply
  3. Christa aka The BabbyMama says

    November 14, 2012 at 12:29 pm

    As joyful as motherhood is, stories like yours remind me – and I hardly need reminding – that every pregnancy is a gamble.I’m very sorry for your loss, but the way you articulate it shows just how strong you are!

    Reply
    • Kat Biggie says

      November 19, 2012 at 11:09 pm

      Thank you Christa!

      Reply
  4. Kat Biggie says

    November 14, 2012 at 2:21 pm

    Thank you so much Christa! My husband told me after this experience that it’s a miracle any babies actually survive at all with all of the crazy things that can happen! Thank you for stopping by!

    Reply

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